Tuesday, September 11, 2012

New Doctor

Gahhhhhh


Zacks new Dr.dosent get him, he gave me this bed time regime that I  am suppossed to follow, I already do most of it except let him scream it out. Its torture. He is now on visterol and clonidine, lowered dose of clonidine and 25 mg of visterol. I am letting him sleep with his sister which he still isnt pleased with. He wants me, to sleep with me. There he feels safe. I dont know what to do, i told him last night that he must try to sleep in his bed tonight, but he cries and screams and melts down...he has school in the morning he needs to get sleep. He got in trouble the first day of school. The teacher laid down the law and since then he has been fairly well in school here are the teachers words when I told her he was really struggeling at home..."maybe he is useing all he has to be "good" and in control in school and so he falls apart when he gets home"..sigh I have been saying this for years. The Dr. Thinks we have no structure I dont know how much more we can have....get off bus, snack, homework, playtime, dinner, TV time, Bath, bed, same thing everyday, what am i doing wrong, It seems like structure to me, maybe I dont know what structure is, In between that we have our meltdowns from something simple as not getting soda to "me hating him because he has to sleep without me", he hits his brother in fits of anger for no seemingly obvious reason, he calls A names, hurtful names when he feels threatened. He must be the smartest and the best at everything and if he thinks that hes not he puts everyone around him down, he can be very cruel. I love him and want to help him, he can be the sweetest most loving boy there is and he is always sorry, he is like 2 different people, This Dr wants to try Intuive or something like that, but not til he sleeps in his own bed, what is up with those requirements, I feel so defeated.

Zacks Mom

Thursday, September 6, 2012

What do you do when your child cant sleep?

Its nothing knew that Zack doesn't sleep well,he takes clonidine, .4mg, it was .5mg but the new pdoc we are seeing wants it lowered, he is very worried about a drop in his blood pressure. He wants to bring it down to .2mg my child will never sleep, hes already waking up numerous times a night crying and with school having started he is exhausted in the morning, crying when he gets woken for school. This new Dr. wants him sleeping in his own bed ( a nightmare as his anxiety is through the roof) he crys and screams and begs me not not to make him, so I give in perplexed and saddened by his great fear of sleeping alone. The new Dr.wont enterain new meds to help with  his behavior until the current med is down and he is sleeping in his own bed. Im fustrated... he needs something to control his behavior, he has become hyper sexual and making very impulsive decisions, wanting to inflict hurt on anyone whom he perceives as treating him poorly, no talking about it just lashing out. The other day I caught him sneaking out of the house with a rubber band gun with the intention of ambushing a little boy who pushed his brother down... thats assult, he could get in real trouble, thank God I figured out what he was about to do. Last night he was becoming "weird" with his brother in the bath...guess its time for a shower alone. The fits of rage are just fustrating, I just let him cry and scream it out, and he is so remorseful after but is unable to stop when he is in the midst of it. I pray he doesnt get in trouble in school, hes usally stellar grades dropped at the end of last year and he spent the last 6 weeks of school eating lunch in the office because he couldnt control his behaviors in the lunch room, I felt so bad for him, I dont want a repeat of last year. We have tried so many drugs I have no idea what this new Dr. has in mind for meds as he wont tell me....but if it requires sleeping in his own room and less sleeping meds I dont see how we will ever find out as he just cant seem to do it. Any suggestions out there to help your sleepless child to get rest. We have a bed time routine but most nights he figures out a way to disrupt it. So not only is he up but so are the other 2 kids...sigh...just at a loss.

Love Zacks mom